After 100 days in the pediatric intensive care unit, our friend Jake is officially “bustin’ out!” Jake was born with Kabuki Syndrome, a rare multisystem genetic condition that affects 1 in every 32,000 births. Kids with this condition have extremely compromised immune systems, so when Jake caught 3 different types of pneumonia last fall, he had to be airlifted to Lurie Children’s for some extra special care. While in the PICU, Jake and his family grew a close connection with his primary nurse, J
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After 100 days in the pediatric intensive care unit, our friend Jake is officially “bustin’ out!” Jake was born with Kabuki Syndrome, a rare multisystem genetic condition that affects 1 in every 32,000 births. Kids with this condition have extremely compromised immune systems, so when Jake caught 3 different types of pneumonia last fall, he had to be airlifted to Lurie Children’s for some extra special care. While in the PICU, Jake and his family grew a close connection with his primary nurse, J
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