The second International Living Better Symposium in London brought together more than 200 people on October 10 for a day of ...

Scientists around the globe are working tirelessly on behalf of the VEDS community to advance research progress. And, they’re ...

Bella had a way of making people feel as though they were the only person in the world when she was talking to them,” said ...

During Mental Health Awareness Month, we recognize that the impact of a genetic aortic or vascular condition extends beyond physical health. Medical trauma, recovery, uncertainty, and major life ...

Broadway pioneer, musical director of Rent, author of new book, Making Rent, and friend of Jonathan Larson and family Tim Weil knows firsthand the tragic potential impact of undiagnosed Marfan ...

Penelope shared her first-person story for Marfan Awareness Month. Hi! My name is Penelope Robles and I’m from the Philippines. This is the story of my 4-year-old daughter, Destinee Jaye, who was ...

Note: This story discusses loss of a young person’s life due to a genetic aortic condition. Mike Osuna and Jeanette Garcia-Osuna remember the first time they heard the words “Marfan Syndrome.” Just a ...

A concise, evidence-based clinical guidance document from the Marfan Foundation in collaboration with Luciana Young, MD, offering families, pediatricians, and cardiologists practical information on ...

Throughout 2025, The Marfan Foundation continued its longstanding commitment to accelerating research that improves the lives of people affected by Marfan syndrome and related genetic aortic and ...